Within the next few days, this site will be closing permanently.
But never fear! All the information contained here will still be available, along with even more useful articles and other features. You can find them at my new site, opening on the same day this one closes.
Here are just a few of the features you will find on the new site:
– Even more articles, including information about the various types of dementia and their characteristics, helpful tips and strategies, and news about research. (But presented in a more organized manner.)
– A discussion forum, where you can share information with and ask questions of fellow readers
– A weekly podcast
– A chance to communicate with me on a one-on-one basis
– And even more!
See you on the other side!
For quite a while now, I’ve been talking about the new website that I’m working on. Well, I have a bit of a teaser for you, a hint of one of the foundations of this new site.
This diagram holds the key to a treasure trove of information about Alzheimer’s Disease. If you’ve ever gotten frustrated having to look at a whole myriad of different sites to find the information you’re looking for, or if you’ve just found out that you or your loved one has Alzheimer’s disease and are wondering what it’s all about, then this is the place for you.
Every item on the chart will be linked to a page (or several pages) with more information. As one of my friends told me not long ago, it will be a sort of Alzheimer’s wiki. Initially, all of the items will be in the form of text. But before long, I’ll be converting some of the items to audio files, that you can download in the form of a podcast and listen to at your leisure. And, in addition to “book learning,” these items will contain personal observations that I’ve made in my 30 years working in the field.
Plus, you may have noticed a couple of items toward the bottom entitled “Discussion Forum” and “Personal Consultation.” I am in the process of setting up a Facebook group where people can discuss various important matters with each other, and where you can contribute your own observations as well as ask questions of others who are in your shoes. And I will also be making myself available for one-on-one conversations with you, in an effort to answer any questions you may have.
Now, when this new site goes live, the site you’re reading now will disappear. It’s going to be a lot of work for me to build and maintain this new site, and I just won’t have the time to devote to this one. And besides, the information from this site will be present on the new one — albeit in a different format.
Oh, and I won’t be leaving out people who are wanting to learn about other diseases which cause dementia symptoms. These disorders will be represented as well, in a similar format.
If you’d like to be kept updated as to just when this new site will be available, then please fill out the form below. I will be sending out a notice on just when the grand opening will be taking place. I hope to see you there!
Okay, so you have Alzheimer’s Disease, or you know someone who has it. Maybe you want to know what to expect, or you want to know how to solve a particular problem related to the disease. You COULD spend hours surfing literally hundreds of sites around the web, to find out what you want to know, when you have so many other things you need to be doing. OR you could find out everything you want to know about Alzheimer’s Disease, in one place, with one click of a mouse.
I am a certified and licensed speech-language pathologist, with over 30 years of experience in the field. I have worked in 40 different long-term care facilities, and also worked for hospitals and home health agencies. I have done a lot of the work of researching this disease for you, and compiled it in an easy-to-read format that you can browse through at your leisure. In addition, I have added my own observations and opinions, where applicable, to help you in your search.
How can I access this huge treasure trove of information, you may ask? Well, it’s not ready to be open for viewing just yet, but will be very soon. (Estimated grand opening on April 1, 2015.) If you would like to be placed on a waiting list, to be one of the very first to gain access to the library, please fill in the form below. The first ten people to register will be eligible for a significant discount on the membership fee. Hey, I’ve done a lot of work putting all of this information together, in order to save you time that you could very well be spending doing the laundry, or spending time with your family, or even playing Clash of Clans! (Please note that this list is different from any other you may have signed up for on this site.)
Here’s hoping to see you on the other side. Thanks in advance.
Okay, I’m assuming that people who come to this site are on a quest of sorts, or looking for answers. Most likely they either have one of the diseases that produce symptoms of dementia, or they know someone who does. (Or, maybe they are a professional who works in one of the fields that strive to help these individuals.)
Well, as I’ve said before in previous posts, I’m in the process of simplifying that quest — giving people a road map of sorts, to help them navigate through the journey of learning about a particular disease, and then trying to figure out how to deal with it.
Instead of just surfing around the net and pulling up a hodge-podge of information, and then trying to sort it all out, wouldn’t it be nice if someone gave you a nice organized path to follow? I’m talking about something like this, for example:
1. Definitions: Just what is Lewy-Body Disease, anyway? (And what do all those big words mean that the doctors use?)
2. What can I expect, if I have it? (Or if my husband has it, etc.) — This will include the stages of the disease, behaviors and other problems that might be encountered by someone who has it,
3. How do I deal with these problems? Tips for specific obstacles encountered along the way, from professionals as well as people who have been where you are. Is there a medical solution?
4. Where can I turn for help? (Lists of resources, and a place to talk to others about specific problems you might have.)
5. What’s being done to treat/cure this problem?
6. And, eventually, how can I provide help and support to others who are going through this?
Now, I know that a lot of this information is already presented here, on this website. But I will be the first to admit that it’s in a fairly disorganized form, and requires a fair amount of hunting around to find what you want. I’m currently working on a way to plug in a specific disorder, such as Alzheimer’s Disease or Vascular Dementia, and find there ONLY articles that pertain to that particular disorder. And they will be presented in a logical order, something like I outlined above, that you can go through in sequence to aid in your learning. Or, if you like, so that you can jump around and find the answer to one particular question you might have.
And, eventually, this will include a forum where you can ask questions and share ideas with others, a regular podcast where you can learn about related topics, and other features that I’ll keep to myself for now. (Basically because I’m not all that sure, myself.) Hey, this is a work in progress! And any ideas from you will be welcome.
If you’d like to receive notice of when this new site is up and running, or when modifications are made to it, please fill out the form below so that I can send you periodic updates. I hope you will join me at my new home, and that you will continue to benefit from what I offer there.
Something that all care partners have to contend with, sooner or later, is helping their loved one move from one place to another. This can involve moving from a bed to a chair, getting up from a chair so that she can walk to the bathroom, getting out of the car, and so on. One important thing for a care partner to consider here is not only to accomplish this without injuring the loved one, but also so as not to become injured yourself. You can’t do your mother any good if you”re down in the back or otherwise incapacitated.
Perseveration is a behavior in which a person repeats a particular word or phrase, action or behavior, or emotion. Typically, the behavior persists long after it is either useful or meaningful, and the person has no conscious control over it. A common example of perseveration is when a person asks the same question repeatedly during the course of an hour, or a day, much to the frustration of those who have provided an answer time after time. However, it is important to remember that we all display perseverative behaviors from time to time. They only become a problem when they disrupt the lives of the individual who exhibits them, or those who are around him, or else is injurious to his health in some way. (3)
As those who read this site on a regular basis are undoubtedly aware, I am currently working on a major revision/update that will hopefully provide a useful service to persons with dementia, and their families and care partners. I know that most of these readers are not prone to comment on what they read, but I’m asking everyone to take a few minutes to answer some questions that will help me know exactly what services are desired, and what priority is placed on their availability. (You see, I can guess what I think is wanted/needed in this area, but it would help me to know what the people who actually use this site want.)
So please take a moment to answer the following questions, in the comments section. If you don’t want your answers seen by others, feel free to send them to me privately at email@example.com. Again, this is your website. Please help me to know what you’re looking for, and what you’d like to see in the future.
1. Tell me a little bit about yourself. What is your approximate age and location? Are you a person with dementia, or a family member or care partner, a profesional, or someone who is just curious and would like to know more?
2. List the 3 most important reasons you go onto the internet (and not just this website), related to dementia. This could be things like:
~ I have a particular form of dementia, or my family member has it, or I take care of someone who has it, or some other reason. Iwould like to know more about it.
~ My doctor used this really big word, and I don’t understand what it means.
~ I have a problem with something, or the person I care for has a problem, and I would like to know what to do about it.
~ Is there a cure or a treatment for my disorder? What is being done to find one?
~ I would like to be able to communicate with others who have my problem, for information and support.
~ I wish I could talk to a professional about my disorder, without having to make a doctor’s appointment.
~ I want to know how to find a nursing home for my loved one.
~ I found something that works really well to help with a particular problem, and I would like to share it with others.
~ And so on.
3. What is one of the biggest things that bothers you about websites that claim to give information about dementia?
Thank you for your help and support. I look forward to hearing from you.